Links
Here are some links to related websites that we feel may be useful.
- www.accessmed-msf.org
Access to essential medicines.
- www.adaa.org
Anxiety disorders.
- www.adherents.com
Religious and cultural information and statistics.
- www.adpana.com
Alcohol and drug problems.
- www.apil.com
Association of Personal Injury Lawyers (APIL) – runs a training division (College of Personal Injury Law (CPIL)) is associate of Sweet & Maxwell publishers in Journal of Personal Injury Law (JPIL).
- www.appeals-service.gov.uk
Challenging decisions about social security, child support or vaccine damage.
- www.ash.org
Action on Smoking and Health.
- www.avma.org.uk
Action against Medical Accidents charity (formerly Action for Victims of Medical Accidents).
- www.bcodp.org.uk
British Council of Disabled People – national umbrella organisation run by disabled people.
- www.bereavement.org.uk
Information, support and standards in bereavement care.
- www.b-i-r-d.org.uk
Brain Injury Rehabilitation & Development charity providing ‘developmental reflexive rehabilitation’ for organic brain dysfunction (brain injury and learning disabilities).
- www.bnpa.org.uk
British Neuro-Psychiatry Association: exchange of information and inter-disciplinary promotion across psychiatry, neurology, neuropsychology and related neurosciences.
- www.brainandspine.org.uk
Brain & Spine Foundation charity providing education and research.
- www.brake.org.uk
Brake – road safety charity seeking prevention of death and injury by education and campaigns, and providing care for bereaved and injured through helpline, support services, police-distributed literature and Road Safety Week.
- www.brt.org.uk
Brain Research Trust charity funding research into neurological diseases and conditions.
- www.cae.org.uk
Centre for Accessible Environments (charity providing information and liaising on access).
- www.cafamily.org.uk
Contact A Family – support for families with disabled children.
- www.careandrepair-england.org.uk
Care & Repair – charity to improve housing and living conditions of older people and those with disabilities.
- www.carersuk.org
Carers UK – support for carers.
- www.cbituk.org
Child Brain Injury Trust charity – helplines, support groups, activity holidays for brothers and sisters, small grants scheme (Hand Up).
- www.cebm.net
Centre for Evidence Based Medicine – education and support on EBM.
- www.cebmh.com
Centre for Evidence Based Mental Health – education and research.
- www.clearinghouse.net
Addiction.
- www.clinicalevidence.org
British Medical Journal site on 200 conditions and 2000 treatments, including stroke, absence seizures, epilepsy, headaches and migraine, multiple sclerosis.
- www.clinical-skills-net.org.uk
Clinical Skills Network for students and clinicians.
- www.Connects.org.uk
Portal for mental health and learning disabilities operated by Mental Health Foundation and Foundation for Learning Disabilities.
- www.cpil.ac
College of Personal Injury Law (training division of APIL).
- www.crb.gov.uk
Criminal Records Bureau – helps employers identify who may be unsuitable to work with children and vulnerable adults.
- www.crusebereavementcare.org.uk
Support for those affected by a death.
- www.csci.org.uk
Commission for Social Care Inspection.
- www.dda.org.uk
Disabled Drivers’ Association – campaigns to improve conditions for those with mobility problems (e.g. Blue Badge abuse and congestion charging).
- www.ddmc.org.uk
Disabled Drivers’ Motor Club – lobbying for disabled drivers and passengers, publishes Disabled Motorist magazine.
- www.dh.gov.uk
Department of Health.
- www.disclosure.gov.uk
The Disclosure Service – government site for Criminal Records Bureau searches, particularly for those working with children and vulnerable adults.
- www.dls.org.uk
Disability Law Service – charity offering free advice to disabled people, family and carers.
- www.dlf.org.uk
Disabled living foundation.
- www.drc.org.uk
Disability Rights Commission – equality body monitoring Disability Discrimination Act.
- www.drowsydriving.org
Drowsy driving.
- www.each.nl
European Association for Communication in Healthcare (publishes the journal Patient Education & Counseling).
- www.ebissociety.org
European Brain Injury Society (EBIS) – promotes public awareness, networking, training, promotes patient and family groups, lobbies for epidemiology and other research, publishes head injury evaluation documents.
- www.encephalitis.info
Encephalitis Information Resource – research, information, support.
- www.epilepsynse.org.uk
National Society for Epilepsy (NSE) – information, support, research, epilepsy care services.
- www.epilepsy.org.uk
Epilepsy Action (British Epilepsy Association) – helpline, seminars, support, Sapphire Nurses, ‘Take Control’ campaign, discounts for Seizure (European Journal for Epilepsy).
- www.fledglings.org.uk
Fledglings – not-for-profit product search service for children with special needs.
- www.foil.org.uk
Forum of Insurance Lawyers – exchange of information and lobbying on insurance litigation.
- www.gsdnet.org.uk
Group for Solicitors with Disabilities (GSD).
- www.guardianship.gov.uk
Public Guardianship Office.
- www.harcourt-international.com
Elsevier publishes Seizure (European Journal for Epilepsy).
- www.headaches.org
Headache.
- www.headinjury.com
Brain Injury Resource Center (operated by Head Injury Hotline, includes journal links).
- www.headway.org.uk
Headway – the brain injury association (national charity).
- www.healthcarecommission.org.uk
Regulation, inspection and standards in NHS and independent healthcare.
- www.hodis.org.uk
National Disabled Persons Housing Service – promoting housing resources for disabled people.
- www.ics.ac.uk
Intensive Care Society – association for clinicians working in critical care.
- www.i-l-a.fsnet.co.uk
Independent Living Alternatives – provides full time personal assistants to disabled people who wish to live in their own home.
- www.ilf.org.uk
Independent Living Funds – financial support to enable disabled people to live in the community rather than residential care.
- www.injuryprevention.com
International journal for health professionals and others in injury prevention.
- www.internationalbrain.org
International Brain Injury Association (IBIA) – publishes quarterly International NeuroTrauma Letter, professional members receive Brain Injury journal.
- www.ipsea.org.uk
Independent Panel for Special Education Advice – free independent advice, tribunal representation and appeals, professional second opinions.
- www.jr2.ox.ac.uk/bandolier/
Bandolier – health digest, free journal abstracts, good links.
- www.listening-books.org.uk
Postal audio books library.
- www.lmca.org.uk
Long Term Medical Conditions Alliance.
- www.lww.com
Lippincott Williams & Wilkins – publishes Journal of Head Trauma Rehabilitation.
- www.medicalert.org.uk
Charity providing emergency medical information about people’s conditions.
- www.meningitis-trust.org.uk
Meningitis Trust (national charity) – prevention, quality care, support for life.
- www.migrainehelp.com
Migraine.
- www.migraine.org.uk
Migraine Action Association ‘bridging the gap between the patient and the medical world’.
- www.migrainetrust.org
Migraine Trust – research and patient support.
- www.narcolepsy.org.uk
Narcolepsy Association UK (UKAN) – promote awareness, local self help groups, research, have narcolepsy recognised as disability by social services, publishes newsletter Catnap.
- www.ncil.org.uk
National Centre for Independent Living – resource on independent living and direct payments for people with disabilities and those working in the field.
- www.netofcare.org
Help for carers.
- www.neurology.org
Neurology journal, official publication of the American Association of Neurology (AAN).
- www.nhsdirect.nhs.uk
NHS Direct – health encyclopaedia, best treatments, self help.
- www.nice.org.uk
National Institute for Health and Clinical Excellence (NICE – from 1 April 2005) – national guidelines on illness prevention and health promotion.
- www.ninds.nih.gov
National Institute for Neurological Disorders and Stroke – ‘Neuroscience in the New Millennium’ biomedical research funding.
- www.opportunities.org.uk
Employment Opportunities for People with Disabilities – helping people with disabilities find and retain work, support and information for employers.
- www.outsiders.org.uk
Shy, disabled and socially isolated people aiming to live life to the full (note that SPOD, the relationship and sexuality charity for disabled people, no longer exists).
- www.patients-association.com
The Patients’ Association – listening to patients, speaking up for change.
- www.peopil.com
Pan European Organisation of Personal Injury Lawyers – to improve communication and co-operation between European jurisdictions on personal injury law.
- www.phabengland.org.uk
PHAB – national charity dedicated to promoting and encouraging the coming together on equal terms of disabled and non-disabled people to achieve an integrated and inclusive society.
- www.radar.org.uk
RADAR – the disability network (campaigning and advising national charity).
- www.remap.org.uk
Technical equipment for disabled people – custom-made aids.
- www.remploy.co.uk
Interwork Employment Services (support for employers, workers and jobseekers); Ethical Enterprise (products and services).
- www.respond.org.uk
Challenging vulnerability and sexual abuse in the lives of people with learning disabilities.
- www.resus.org.uk
Resuscitation Council UK – education and references to healthcare professionals and the general public on resuscitation practice.
- www.riding-for-disabled.org.uk
Giving disabled people the opportunity to horse ride or carriage drive to benefit their health and well being.
- www.roadpeace.org
National charity for road crash victims and bereaved families – helpline, research, support and campaigns (including international).
- www.rospa.co.uk or www.rospa.com
Royal Society for the Prevention of Accidents – information, advice, training, resources, campaigns.
- www.shelter.org.uk
Homelessness and housing charity – housing advice, campaigns, working with housing sector.
- www.sig.net/~allergy/welcome.html
Allergies.
- www.special-needs-kids.co.uk
Advice and support on products and services for children with special needs.
- www.spinalcord.org
Spinal Cord Injury Association.
- www.stroke.org.uk
The Stroke Association – research, campaigns, information, support, Stroke News.
- www.sweetandmaxwell.co.uk
Sweet & Maxwell site, publishes Journal of Personal Injury Law in association with APIL
- www.tandf.co.uk/journals
Taylor & Francis Group – publishes Brain Injury and other neurology and neuroscience journals
- www.tcf.org.uk
The Compassionate Friends – support for parents and family after the death of a child.
- www.theabn.org
The Association of British Neurologists – promoting education in and advancement of the neurological sciences.
- www.the-sequal-trust.org.uk
Specialised Equipment Aids for Living – bridging the gap between communication and disability.
- www.3hfund.org.uk
Help the Handicapped Holiday Fund – subsidised group holidays for physically disabled children and adults with volunteers (to enable family respite).
- www.ukabif.org.uk
United Kingdom Acquired Brain Injury Forum – advises the All-Party Parliamentary Group on brain injury, the general public, organises events and conferences.
- www.uk-sobs.org.uk
Survivors of bereavement by suicide.
- www.vitalise.org.uk
Vitalise – essential breaks for disabled people and carers (formerly the Winged Fellowship Trust) at accessible centres in Cornwall, Southampton, Essex, Nottingham and Southport.
- www.youramazingbrain.org.uk
Wellcome Trust and At-Bristol site: explore your brain, take part in real life experiments, test yourself with games, illusions and brain benders.
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